Friday, April 10

Can't believe we're back

Austin has had some problems with feedings over the last couple of weeks which worsened over the last few days. Then, yesterday I thought he looked a little blue. So, I hooked him up to the pulse ox and found that his O2 sats were very low (40- 50's). Chris came home and we had to turn up his oxygen from 1/32 of a liter to 1 1/2 to get him to pink back up and start sating in the 90's where he should be. After speaking with the pediatrician and pulmonologist on call we decided to bring him to Richland's ER where they decided to admit him for observation. They seem to think this was caused by his reflux, but after much talk they are going to give him a dose of Lasix. He had trouble with keeping fluid on his lungs while in the NICU. This is caused by his Chronic Lung Disease. We have been able to turn him down to 1/2 liter, but have been unable to wean any further. That post was started last night, now I'm posting this Saturday around 1:30pm. He is doing much better on his O2 requirements since the Lasix. He is down to 1/8L, which is the lowest they can turn a child down on the peds floor. So, we're pleased with that. Thankfully, one of his NICU nurses gave us that bit of knowledge so we could continue to push the pediatric residents and Attending Physicians It has been very frustrating, because Austin has been out of the NICU too long to return. So, now he is being seen by physicians that don't know him and have a totally different way of thinking. Austin's pediatric group doesn't see patients in the hospital, but Dr. Baggett called and spoke to the attending up here. I think she was also instrumental in pushing them to figure something out. After she called they said that the they were calling in Austin's pulmonologist to see him. He hasn't been by today yet. So, that is that par. Now, they're saying that his blood culture grew out a bacteria. So, now he is on IV antibiotics and will be here at least another day until Easter. They feel that he doesn't actually have an infection and that it was a contamination from his skin. However, they drew blood again and have to wait and see if that grows anything out. Austin is acting much better. He is breathing better and looks all pink in color. He is eating better with very little spit-up, but we know babies spit up occasionally. So, we do expect some, but he had been spitting huge amounts. So, I just wanted to update everyone. Thank you so much for the prayers and please continue to pray. We can't stand being here and most importantly watching Austin endure more after going through so much already. We aren't familiar with the pediatricians and staff in the Children's Hospital. Please pray for the knowledge and willingness to listen to us since we know him best. Please pray for Chris and I to be calm and be able to deal with being back here. Someone must stay with Austin at all times, so pray that Bradley handles being away from one or both of us. He was just starting to get use to our new "normal". Pray that we get to home early tomorrow morning to celebrate Christ' being awesome as a family. Thank you for the prayers and support! It's so good to feel God's love through all of your calls and emails. God is good and while this has been upsetting and scary it could have been worse. The pediatric staff has told us that Ausitn will be in and out of the hospital over the first 2 years of his life. He is a strong little boy, so please keep praying that he continues to be strong so we can all watch him grow. We'll try to keep y'all updated. Wishing everyone a Happy Easter!

1 comment:

  1. Thanks for the update. Tried to call today, but got disconnected and then I got too busy to call again. Hope the next BC is neg and you can go home tomorrow. Love, Sarah

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